Kintsugi.

I'm never going to be THAT girl. Composed and "PERFECT". I'm a jeans a tee kinda girl - with imperfect skin, scars galore, and improvements to be made. I'm sick all of the time, and REST is number one for me to continue to "human". I've broken countless times, but the important part there is … Continue reading Kintsugi.

…, but you’re supposed to be.

; I refuse to believe your lies. Dear Body, You will not break me. Do you know how frustrating you make life? I hate that it affects so many other people, and there's nothing that I can do about it. I'm supposed to lose chunks of you, but you laugh at the thought of it. … Continue reading …, but you’re supposed to be.

I dare you.

And all of the doctors sang in a harmonious tune "we told you so". I just don't like to be told what to do. 🤷🏻‍♀️ You go to a doctor for help. And I'm not sorry for expecting a solution in any case - especially for my chronic illnesses. If I had a dollar for … Continue reading I dare you.

Reach Out To Someone.

When it hails on the windows, The wind pushes the ice to an angle, The sky lights up with lightening, The thunder amplifies it's cry. "Look at me here! Now listen, please. Hear me this once. I beg of you. Just look, I'm here!... ...Why did I even show? They complain when I don't, and … Continue reading Reach Out To Someone.

Sjögren’s Awareness Month

APRIL! It's come around again! Having a chronic illness isn't just about finding support and a shoulder to lean on when times get tough (if you're able to lean on someone, that is...) It's about finding awareness inside of people that hadn't heard the name, hadn't known someone who, hadn't given a thought. It's about … Continue reading Sjögren’s Awareness Month

That Big Red LABEL

I haven't really mentioned anything about my life directly in a little while, but good news is we are taking away the: Bipolar label! Now they just call me chronically depressed. 😕 I hate that they're right. Only sometimes though. Do you how hard it is? To have a stamp on your head, at age … Continue reading That Big Red LABEL

Ultrasound

I hate knowing that the ultra sound tech knows what she's seeing. She knows what's wrong or not wrong with you and is unable to say without the radiologist looking at the screening first. Every line she used to measure my kidneys, liver, spleen... and whatever else they requested imagining of, every sound of blood … Continue reading Ultrasound

Compass

Positive. Active mononucleosis. 5th time since 2015. Is it possible to have a permanent active case? The internet says yes. My rheumatologist (who I see on May 30th) wants to do research into it so she can better treat me on my appointment. She's requesting all blood work and labs since....? Um. I'm not sure … Continue reading Compass

Yellow 5 Dye

I've had so many issues with things hurting my stomach and causing digestive issues in the past, it wasn't much of a surprise when it hit me all over again. I seem to be ok for a while, but then become randomly allergic to something new. It's crazy right? Yeah I feel that way too. … Continue reading Yellow 5 Dye

Apps That Help Me Out

I have quite a few apps on my phone... mixed with music, I'm always "forced" (psh forced😂) to get the highest memory holding phone that AT&T has available. If you are struggling with any of these issues, I strongly suggest you trying these apps out and seeing how they help you as they have helped … Continue reading Apps That Help Me Out