“What the fuck is wrong with me?” “I think you don’t feel good, you’re tired, you’re scared, you feel alone, and there are a lot of unknowns right now.” https://youtu.be/WgKTCweubC8 We've all been told when we were littleWe could grow up and live a fairy tale,But no one ever bothered telling us thatThe storybook ending … Continue reading We’re breathing underwater.
My upside down is filled with: Nights to sleep - while I lie awake, Time for adventure - is the time I take, to prevent getting sick, to prevent the pain today, to prevent an asthma attack, to rest for tomorrow's plans - so I lay down, to pull the energy from anywhere around me, … Continue reading Upside Down.
It's on the days of which required a bit of venting to make it through that I have to remember: that's what "Fearlessly Making Sunshine" is all about. The name of this blog, in no way, suggests that finding happiness and warmth is easy. This world is in fact pretty cold to the touch, and … Continue reading Pause.
Lately it's been a daily whirlwind of pain... It all started with my diagnosis with mono. My doctor wanted to do an ultrasound of my spleen and upper abdomen, since there had never been one ordered before - only an ultrasound for my gallbladder in 2015. Im not sure how many have followed me through … Continue reading I Guess I Found a Time Machine.
Positive. Active mononucleosis. 5th time since 2015. Is it possible to have a permanent active case? The internet says yes. My rheumatologist (who I see on May 30th) wants to do research into it so she can better treat me on my appointment. She's requesting all blood work and labs since....? Um. I'm not sure … Continue reading Compass