Walking Away.

Come February, I’m struggling to get through the days of autoimmunity… having been exposed to illnesses, bacteria, and viruses a toddler’s immune system should fight off, but my defenseless, suppressed immune system cannot.It’s a never ending battle: “Do I push through this, not knowing if i will feel better or worse the next day?” “Will … Continue reading Walking Away.

When a song is the definition of you…

I'd like to tell you that my sky's not blue, it's violent rain And in my world, the people on the street don't know my name In my world, I'm seven feet tall And the boys always call, and the girls do too Because in my world, I'm constantly, constantly havin' a breakthrough (Hmm) Or a breakdown, or a … Continue reading When a song is the definition of you…

Hurt people hurt people.

A Rare Lesson in Life Click above to watch an amazing story of kindness and empathy. She paints such a beautiful picture of all that our world could be, if only we all remembered that everyone has a battle they're fighting. All that we need to do is be kind. It sounds so easy, when … Continue reading Hurt people hurt people.

Upside Down.

My upside down is filled with: Nights to sleep - while I lie awake, Time for adventure - is the time I take, to prevent getting sick, to prevent the pain today, to prevent an asthma attack, to rest for tomorrow's plans - so I lay down, to pull the energy from anywhere around me, … Continue reading Upside Down.

“I’m sick of losing soulmates.”

*Explicit song lyrics* "I can take the hit, but I'm sorry - I don't want the bruise." - "Headspace" by Lewis Capaldi Loyalty is a lifestyle - not a choice, but it's a lifestyle that people just don't chose to live anymore. Unfortunately, fibromyalgia and Sjögren's Syndrome choose the loyal behavior far more often than … Continue reading “I’m sick of losing soulmates.”

I dare you.

And all of the doctors sang in a harmonious tune "we told you so". I just don't like to be told what to do. 🤷🏻‍♀️ You go to a doctor for help. And I'm not sorry for expecting a solution in any case - especially for my chronic illnesses. If I had a dollar for … Continue reading I dare you.

You’re sorry.

"I'm sorry that I don't know what you're feeling!" It's always said out of anger; I think because you're tired of me "not trying" - such that its obvious to you. Or Maybe because I don't have the energy to fight. Maybe because I don't have the energy to feel such an intense emotion, Maybe … Continue reading You’re sorry.

Priorities.

My biggest source of pain, hurt, betrayal, and truth. Priorities. They show you what matters to other's - and when it doesn't turn out to be you, and you've given them your all... I wish I knew how to not wear my heart on my sleeve... Then I have heard that because I do, it … Continue reading Priorities.

Feral.

She's different. You pushed her to be different. Her life is full of suppressing her differences so that she can fit in and look popular at school. She pulls it off well. At home, she walks into the door, and collapses - trying not to make it too obvious. Her sister doesn't collapse. At home … Continue reading Feral.

Medication Shaming

When I was diagnosed with fibromyalgia, I was relieved to finally have an answer and name to what was causing my body to viciously stab, burn, electrocute, punch, overheat, get random fevers, require a seating in social circumstances, pass out from fatigue even though I just woke up, become randomly nauseous and repulsed by food … Continue reading Medication Shaming