Autoimmune Disease

Senses All Around.

“Verse of the Day:

“And anyone who believes in God’s Son has eternal life. Anyone who doesn’t obey the Son will never experience eternal life but remains under God’s angry judgment.””

‭‭John‬ ‭3:36‬ ‭NLT‬‬

Quote from Devotional:

“There is time for study, but this time is for stillness in His word. For God to be with you wherever you go.”

Verses:

“Study this Book of Instruction continually. Meditate on it day and night so you will be sure to obey everything written in it. Only then will you prosper and succeed in all you do.”

‭‭Joshua‬ ‭1:8‬ ‭NLT‬‬

“This is my command—be strong and courageous! Do not be afraid or discouraged. For the Lord your God is with you wherever you go.””

‭‭Joshua‬ ‭1:9‬ ‭NLT‬‬

[My] notes:

This verse is well known, I would say. But I have read the rest of the “story” that interlinks with it this morning. We read verses, and we never wonder exactly where they came from… what they truly mean, or in what context the words come in.

These specific words were given to Joshua as instruction from God after Moses’ death. Joshua was second to Moses to lead the Israelites across the Jordan river to foreign land. The Lord promised Joshua that He would be with him, that every piece of land the army stood on, would belong to them.

What a promise huh? These verses come immediately next to each other. The book of instruction is often referred to as the Bible, when the verse is read separate from context, but the book THE LORD is referring to, is the instructions of which He gave Moses in how to overcome the land of his army’s enemies.

Which fits to be taken out of context. Funny how that works.

The Bible is our instruction on how to overcome (better word: exist) in a land with our enemy – the Devil, himself, and his own army of which continues to grow.

Even though:

We will “be strong and courageous! We will not be afraid or discouraged. For the Lord our God is with us wherever we go.”

‭‭Joshua‬ ‭1:9‬ ‭NLT‬‬

Love you Deed!!”

Since the passing of my Mimi, I have sent my grandad devotionals on a daily basis. I read several on the topic of “grieving”, and since I benefited from them so greatly, I felt that he would too.

And so we continue this tradition to this day. I get the devotionals from Bible.com, and they have been wonderful in addressing what I feel that I need addressed in my heart.

I have several Devotionals saved aside for when I get through the list of the ones I want to complete first. Many on finding my true life’s calling.

Being, what society considers to be “sick” isn’t viewed as a blessing. I do believe, however, that it makes me slow down in this game that we call life… I find myself noticing things that I normally would not. Which includes details of someone’s wardrobe or personality, or what their body language spoke for them…

However as we know,

Most times, I’m unable to deal with the world as we all know and view it as. Right now as I type this, I can feel (literally) the dust, the tiny dirt particles on my skin and in my nasal passage ways when I breathe.

Where we live… environment isn’t the best for my health. It’s very dry here. Earlier this summer, we had a negative humidity level…. yes. I would also like to know how that is possible.

Today is beautiful, though. Still dry. 😂☔️🙏🏼

And with fibromyalgia, it’s difficult not to be… so sensitive. (Ha. You’ll see what I did there in a second.)

My skin – I feel EVERYTHING. And sometimes, just that EVERYTHING hurts. The sun brings rashes to my skin, if that will give you a better picture. Now, as I sit here, I feel as if sandpaper is sitting on top of my skin. I’m literally NOT itching -but anxiously waiting for the time that I can shower.

My nose – I smell EVERYTHING. First thing in the morning, I walk from my bedroom into my kitchen, which shares a wall with the garage – and the trash can that we gather about 3 trash bags full into before running it to the large garbage cans that the loud garbage trucks empty at least 1x per week in the alley. Yesterday, we had one bag of trash in the trash in our garage, and I could smell it through the wall. Believe it or not, It still happens. This plays a huge role in my nausea.

(By the way, as I speak with my husband in between sentences, I can feel the dust in the air, now drying out my mouth and eyes… because I needed help with that…🤦🏻‍♀️) it’s because the humidity level here is so incredibly low.

97D7EAA9-B957-498A-B470-644B17B828DE.png

(If anyone would like to donate to the cause -aka “Making Bailey’s Husband Less Crazy Due to Her Sensitivities” this Mölekule would be greatly appreciated .

❤️

😝 JUST KIDDING.

No seriously… 😂🤷🏻‍♀️😉😝)

My ears – at times I can hear undertones, too high pitches for anyone else’s ears to pick up. My husband just turned on the sink faucet… and as he did, the “on” motion made a very high pitched squeal, in turn, making me flinch. It’s habit now for Brady to tell me “Hey Bay, I’m going to turn on the blender!”, probably not a normal practice in your household… but there are times that the high pitched tones in the Ninja’s mighty mixing of our smoothies pierces my ears.

My eyes are always quite affected by brightness, as expected.

And sometimes even, my taste is weirdly off. I may be able to taste extremely sensitively one day, and the next day, taste nothing at all – seriously.

It changes everyday, somedays are worse than others, and other days I don’t notice a thing.

I guess, all around, I’m just a sensitive person. 🤷🏻‍♀️❤️

Love the peace when I feel alone

It’s a part of me that I never run from

Black and white, playing clean surround

Feet on the ground, but I hate it down there

Hot and cold, young and old

All the more I know, the less I feel right

Hot and cold, young and old

All the more I know, the less I feel

I’m high and I’m low, no control

But everything’s looking peach

I’m high and I’m low, no control

But everything’s looking peach now

So I don’t need it all when it feels like old

‘Cause everything’s looking peach now

Hate the feel when I’m in the crowd

It’s a part of me, I can never run from

The colour’s bright, playing in surround

Pull me off the ground where the air is so clear

Hot and cold, young and old

All the more I know, the less I feel right

I’m high and I’m low, no control

But everything’s looking peach

I’m high and I’m low, no control

But everything’s looking peach now

So I don’t need it all when it feels like old

‘Cause everything’s looking peach now

I know it’s hard to see me down

I cry and cry upon the ground

A simple price I pay for all the love I feel when I’m okay

I know it’s hard to see me down

I cry and cry upon the ground

A simple price I pay for all the love I feel

I’m high and I’m low, no control

But everything’s looking peach now

So I don’t need it all when it feels like old

‘Cause everything’s looking peach now

No I don’t need it all when it feels like old

‘Cause everything’s looking peach now

Everything’s looking peach now, now

– “Peach” by Broods

 

❤️☀️🦋,

Bailey

2 thoughts on “Senses All Around.

  1. You know what I think, Bailey? I think normal is relative. So even though your hubby has to warn you before using the Ninja, it’s a normal thing in your household. We’re not all the same and that’s ok. Just as long as you both are happy and healthy.
    Thanks for sharing these intricate details with us. Honestly, I never knew of this condition until we met and I know you have tough moments in dealing with it, yet you deal with it all so beautifully. You lean on God as we all should with our worries and stresses and you get your message out despite your struggles with energy. You’re awesome!
    And so is your wonderful husband! I’ll be the first to donate to that don’t drive him crazy fund when you’re ready 😋💙

    Liked by 1 person

    1. Haha! Brady just laughed. I read that to him.
      Trey you give me such compliments that I’m no way do I deserve!!
      Thank you so much for your kindness!!
      You know, Dr. Phil (😉) defines “normal” as a way to live in which nothing interferes with healthy functioning or gets in the way of your goals. I would look at that definition and label me as quite “abnormal” actually. Which I have accepted as difficult as it is at moments. I fear as though Brady sees me as a caregiver though. It makes me nervous. Dr Phil also said “the best way to predict future behavior is by looking at relevant past behavior.”

      Like

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