When you’ve been diagnosed, but you still struggle with every day life…

August 23, 2018

I’m fighting through all of the pain! No worries there. I’m in a nasty flare from this past year. Whew. It’s been a whirlwind.. The flare will fade away eventually though.

I’m struggling through exhaustion. I’m actually nodding off as i answer this and am having to wake myself up by shaking my head and refocusing my eyes…. (🤦🏻‍♀️🙈)… and I’m also having picking up my phone i just dropped into my lap…😑 I’m sooooo beyond the word exhausted…. that word gets used so often, it’s lost its meaning. “Exhaustion”. Seems many words have.

September 2, 2018

Steroid shot and antibiotics for ear infections and sinus infections. Plus a cold on top of all of that. The weather man calls for bad weather, but bad weather here… isn’t really bad. It brings so much pain with it. Debilitating, “Brady, i can’t thank you enough for replacing our couch”, no movement pain that makes time fly by like a bumblebee (up and down, stinging but moving all too quickly – even though they really fly quite slowly)… But, oh do we ever need the rain!❤️❤️ I would rather deal with some pain (I have my “I’m not moving” area set up nicely) than miss the rain and get more grass fire watches/warnings.

September 3, 2018

My doctors want me to do a sleep study. My husband disagrees… this doctor, however, threw out the word “narcolepsy” (psh) as a “need to rule out” diagnosis. No telling anymore! Brady wants me to be retested for RA and lupus, even though those are probably negative due to the meds I’m taking – they would exclude the blood test, I would think. I don’t know though… I’m not a doctor.😂🤷🏻‍♀️ I actually… probably could be by now though. 🙈 (just kidding).

September 6, 2018

Brady and I decided against a sleep study. I think it’s less likely narcolepsy, more so likely lupus or RA. Or just plain fatigue. I do often fall asleep sitting up. Ha. I know a sleep study would do me some good but I doubt any answers would come of it.

The same doctor that mentioned narcolepsy, also mentioned that (duh lol!) I’m on a large amount of medications that each have fatigue as a side effect. So most likely that. Praying my way to health. God is the one who made me – I think He is probably the best direction to search for answers ❤️

Believe it or not, when I have things to do, it’s quite hard to stop me from working around the house. It’s almost OCD. It just eats at me “laundry… laundry… laundry….) or whatever needs to be done!

Brady has been off of work for a little while, and through the yuckiness, I’ve deep cleaned our bathrooms, and done laundry like a champ!

Not so much today…. Carrying the box of frozen food that arrived today from the top of the box as it began to open before getting to the freezer, and stuffing it all inside, was enough to take me out of the game.

Cue Roomba. Go town buddy! And thank you, sir, for entertaining the cat. 👍🏼🐧

(Yes my food comes premade and packaged, and shipped to my front door)… I have tried for years to make nutritious, tasteful, and easy meals… I have so many food allergies. Gluten from Celiac disease takes literally almost everything from grocery shelves off of your list of possibilities. And dairy, if I have too much of it, just really upsets my stomach.

When it comes to any type of meat – I just hate the taste of it! Plus everything that is fed to that animal (or injected into), you are exposed to as well.

Food in the USA is ridiculous. I’ve heard of people having allergies here and traveling over seas, and their allergies are ok over there! So many things are added to everything here.

I have to be careful with my skin, now, due to a medication that suppresses my immune system – certain parabens are added to shampoos and conditioners, lotions, make up, laundry detergents, dryer sheets, hair colors… etc that I have found out the hard way I am allergic to them! 🤦🏻‍♀️🤷🏻‍♀️ The products actually burn my skin, one day I put on a face product and had blisters for a while after that… you can imagine how long that takes to heal!

Ridiculous….So I get the most basic things that i can – I know every ingredient, if it’s a strange word, I know what it is and how it’s “made” and what it’s use is in that item…. it’s all a tad stupid. Haha!

It’s always been a pain.. making my meals. And it’s hard for me to get the energy to. I actually would rather not eat. (😱😖) I found, on FB, a website that will ship their premade foods to you – frozen. You can pick what type of dietary restrictions you have, and it does not have meat in any of them (YAY!). (Brady uses them too because they’re delicious, and he adds meat that he cooks separately to each meal). They hide the taste of veggies for any type of veggie hater (aka Brady – going on 30 years now 😂).

Here’s a link if anyone wants to check them out. With Brady, the biggest part, is that he’s getting (both of us, really) nutrients that we don’t have access to here, and are made easy to heat or blend…

🍎🍌🍑🥥Daily Harvest 🍽 – a healthy, fast, and easy alternative to meals. ☕️🍍🍅🥦🥒🥕

“The soul would have no rainbows if the eyes had no tears.” ⛈💧🌈☀️



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